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Barth Syndrome: A family�s struggleBarth Syndrome, a rare condition which is a result of a lipid deficiency, may have had a cure for it found back in January by an Indian scientist, ... read more
Indian scientist discovers putative cure for orphan disease
According to Dr Malhotra, "Barth Syndrome is a genetic disease that affects males, causing muscular and cardiac abnormalities. ... read more
I Must Save My Child
The McCurdys offer hope to families dealing with rare Barth syndrome. After Joshua was born with congenital heart disease, the Pauls took action. ... read more
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